The Last Stretch

I am on the last little stretch before the surgery! It's amazing how in denial I can still be, thinking that I do not have anything wrong.

But then you get a wake up call when your body does funky things you can't stop, and then you fall down the stairs twice. Once I popped my shoulder, and the second I popped a hip and broke my back molar coming down on my side.

So I got that tooth fixed ASAP, thank the heavens it didn't damage any roots! At the dentist my mouth was opened for an extended period of time, and needles were involved. Just when you think you have this whole Dystonia thing under control.... another reminder!

I got lock jaw while working as a floor nurse! My jaw had increasing pain through the week, and I revisited the dentist. Nothing wrong with my tooth. At work, it sealed shut (and not to be gross) but when you have an intense cramp like that, it causes immense pain. I do in fact throw up sometimes from the pain. Well if your mouth seals... and tons of pain occurs..... I did not want to not be breathing should that happen. Plus this was the last straw! I couldn't take it anymore!

The DBS surgery is already maxing out our deductible, so any visits anywhere else is essentially "free." I got off of work at 11:30pm and we headed straight to the ER. I got an injection in the butt, haha! That was soooo painful, I almost shouted the unforgivable haha! Wow I feel so sorry for people I give injections to of that nature! I can sympathize for sure!

After a half an hour my jaw opened halfway, and a lot of the pain was gone. What I didn't expect was the tremors that ensued, I had not realized how tight and locked up my whole body was! The doctor came in as I was full-body tremoring and said, "Wow, well that did something!" It really is anybody's guess with Dystonia.

I got the best sleep of my life.

But as things go because it is neurological, it came back in the morning (not the lock jaw, just general stuff) and I felt so sick to my stomach because my tolerance of the pain was no longer there having experienced relief. That was a rough day.

But here we are, three weeks out, and that event made me so hopeful for what is to come! It will be a longer than anticipated recovery, but what is four months out of your life to be essentially fixed? I am getting so excited!

Three more weeks!

Here are some pictures of what it looks like, I'm going to try and catch a storm on video sometime. It'll be so interesting to record improvement and the likes.